References by Section
Introduction
Centers for Medicare & Medicaid Services (CMS), HHS. (2008, June). Medicare and Medicaid programs: hospice conditions of participation. Final rule. Federal Register. 73(109):32087-220.Ferrell, B. R., and Coyle, N. (Eds.). (2010). Oxford Textbook of Palliative Nursing (3rd ed.). NY: Oxford University Press.
MedQIC PEACE Project. Retrieved 09/01/2009 from http://www.qualitynet.org/dcs/ContentServer?c=MQParents&pagename=Medqic%2FContent%2FParentShellTemplate&cid=1228695715754&parentName=Topic
National Consensus Project for Quality Palliative Care. (2009). Clinical Practice Guidelines for Quality Palliative Care (2nd ed.). Retrieved 09/14/2009 from http://www.nationalconsensusproject.org/
National Association for Home Care & Hospice. (2007). Manual on Implementing a Set of Hospice Quality Measures Quality Assessment and Performance Improvement (QAPI) Program Development Collaborative.
National Hospice and Palliative Care Organization. (2008, October). NHPCO Facts and Figures: Hospice Care in America. Retrieved 09/14/2009 from http://www.nhpco.org/templates/1/homepage.cfm
National Hospice and Palliative Care Organization. (2009, December). Strategic Plan for 2010-2012. Retrieved 01/05/2010 from http://www.nhpco.org/templates/1/homepage.cfm.
National Quality Forum. (2009). Composite Measure Evaluation Framework and National Voluntary Consensus Standards for Mortality and Safety - Composite Measures a Consensus Report. Retrieved 09/14/2009 from http://www.qualityforum.org/.
National Quality Forum. (2006). A National Framework and Preferred Practices for Palliative and Hospice Care Quality: A Consensus Report. Retrieved 09/14/2009 from http://www.qualityforum.org/.
Quill, T. E., Holloway, R. G., Stevens Shah, M., Caprio, T. V., Olden, A. M., Porter Storey, C. (2010). Primer of Palliative Care (5th ed.). IL: American Academy of Hospice and Palliative Medicine.
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Preparation
Bergen-Jackson, K. M., Sander, S., Herr, Keela., Fine, P. G., Titler, M., Forcucci, C., Reyes, J., McNichol, P. (2009, November/December). Determining Community Provider Practices in Hospices The Challenges of Documentation. Journal of Hospice and Palliative Nursing, 11(6), 334-341.Bridges, W. (1987). "Getting Them Through the Wilderness". Retrieved 09/14/2009 from http://www.wmbridges.com/.
Bridges, W. (2009). Managing Transitions Making the Most of Change (3rd ed.). PA: Perseus Books Group.
Hanson, L.C., Schenck, A. P., Rokoske, F. S., Abernethy, A. P., Kutner, J. S., Spence, C., Lund Person, J. (2010, January). Hospices' Preparation and Practices for Quality Measurement. Journal of Pain and Symptom Management, 39(1), 1-8.
Kennedy, J. (2009, October). Hospice Documentation The Big Picture. Home Healthcare Nurse, 27(9), 547-554.
Knowles MS, Horton III EF, Swanson RA. (1998). The Adult Learner (5th ed.). TX: Gulf Publishing Co.
Langley, GJ., Moen, R.D., Nolan, K. M., Nolan, T.W., Norman, C. L., Provost, L. P. (2009). The Improvement Guide. CA: Jossey-Bass Publishers.
Puchalski, C., Ferrell, B., Virano, R., Otis-Green, S., Baird, P., Bull, J., Chochinov, H., et al. (2009). Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference. Journal of Palliative Medicine, 12(10), 885-904.
Rizzo, V. M., Engelhardt, J., Tobin, D., Della Penna, R., Feigenbaum, P., Sisselman, A., Nicholson, J.S., et al. (2010). Use of the Stages of Change Transtheoretical Model in End-of-Life Planning Conversations. Journal of Palliative Medicine, 13(3), 1-5.
Rodgers EM. (2003). Diffusion of Innovations (5th ed.). NY: Free Press.
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AIM Data Collection Process
Brunelli, C. Zecca, E., Martini, C., Campa, T., Fagnoni, E., Bagnasco, M., Lanata, L., and Caraceni, A. (2010). Comparison of numerical and verbal rating scales to measure pain exacerbations in patients with chronic cancer pain. Health and Quality of Life Outcomes, 8(42), 1-8. Retrieved 08/16/2010 from http://www.hqlo.com/content/8/1/42.
Campbell, M. L., Templin, T., and Walch, J. (2010). A Respiratory Distress Observation Scale for Patients Unable to Self-Report Dyspnea. Journal of Palliative Medicine, 13(3), 1-6.
Chassin MR, Loeb, J. M., Schmaltz, S. P., and Wachter, R. M. (2010, August). Accountability measures--using measurement to promote quality improvement. New England Journal of Medicine, 363(7), 683-8.
Curtiss, C. P., (2010, September). Challenges in Pain Assessment in Cognitively Intact and Cognitively Impaired Older Adults with Cancer. Oncology Nursing Forum Supplement, 37(5), 7-16.
Mahler, D. A., Selecky, P. A., Harrod, C. G., Benditt, J. O., Carrieri-Kohlman, V., Curtis, J. R., Manning, H. L., et al. (2010, March). American College of Chest Physicians Consensus Statement on the Management of Dyspnea in Patients with Advanced Lung or Heart Disease. Chest, 137(3), 674-691.
Nekolaichuk C, Watanabe, S., and Beaumont, C. (2008, March). The Edmonton Symptom Assessment System: a 15-year retrospective review of validation studies (1991--2006). Palliative Medicine, 22(2), 111-122.
Noguera, A., Centeno, C., Librada, S., and Naval, M. (2009). Screening for Constipation in Palliative Care Patients. Journal of Palliative Medicine, 12(10), 915-920.
Schulman-Green, D., Cherlin, E. J., McCorkle, R., Carlson, M. D. A., Beckman Pace, K., Neigh, J., Hennessy, M., et al. (2009). Benefits and Challenges in Use of a Standardized Symptom Assessment Instrument in Hospice. Journal of Palliative Medicine, 10(10), 1-5.
Selby, D., Cascella, A., Gardiner, K., Do, R., Moravan, V., Myers, J., and Chow, E. (2010, February). A Single Set of Numerical Cutpoints to Define Moderate and Severe Symptoms for the Edmonton Symptom Assessment System. Journal of Pain and Symptom Management, 39(2), 241-249.
Wasteson, E., Brenne, E., Higginson, I. J., Hotopf, M., Lloyd-Williams, M., Kaasa, S., Loge, J. H., on behalf of the European Palliative Care Research Collaborative (EPCRC). (2009). Depression assessment and classification in palliative cancer patients: a systematic literature review. Palliative Medicine, 23(8), 739-753.
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Calculating Quality Measures
Berwick, D. M. (2003). Improvement, trust, and the healthcare workforce. Quality Safe Health Care Supplement, 12, i2-i6. Retrieved 08/16/2010 from http://qshc.bmj.com/.Practice Changes
A Statement of Principles and Recommendations U.S. Department of Health and Human Services Advisory Committee on Minority Health (ACMH). (2009). Ensuring that Health Care Reform Will Meet the Health Care Needs of Minority Communities and Eliminate Health Disparities.Agency for Healthcare Research and Quality. (2008). National Healthcare Disparities Report. Retrieved 03/10/2010 from http://www.ahrq.gov/.
Barnato, A. E., Anthony, D. L., Skinner, J., Gallagher, P. M., & Fisher, E. S. (2009). Racial and ethnic differences in preferences for end-of-life treatment. Journal of General Internal Medicine, 24(6), 695-701.
Born, W., Greiner, K. A., Sylvia, E., Butler, J., & Ahluwalia, J. S. (2004). Knowledge, attitudes, and beliefs about end-of-life care among inner-city African Americans and Latinos. Journal of Palliative Medicine, 7(2), 247-256.
Campbell, C.L., Williams, I. C., Orr, T. (2010, July/August). Factors That Impact End-of-Life Decision Making in African Americans With Advanced Cancer. Journal of Hospice and Palliative Nursing, 12(4), 214-224.
Connor, S. R., Elwert, F., Spence, C., & Christakis, N. A. (2008). Racial disparity in hospice use in the United States in 2002. Palliative Medicine, 22(3), 205-213.
Hanchate, A., Kronman, A. C., Young-Xu, Y., Ash, A. S., & Emanuel, E. (2009). Racial and ethnic differences in end-of-life costs: why do minorities cost more than whites? Archives of Internal Medicine, 169(5), 493-501.
Hospice and Palliative Care Association of Iowa. (2009). QAPI Snapshot Program. OCS, Inc. Retrieved 8/10/2010 from http://www.ocsys.com/.
Johnson, K.S., Kuchibhatla, M., and Tulsky, J. (2009). Racial Differences in Self-Reported Exposure to Information about Hospice Care. Journal of Palliative Medicine, 12(10), 921-927.
Ludke, R. L., and Smucker, D. R., (2007). Racial differences in the willingness to use hospice services. Journal of Palliative Medicine, 10(6), 1329-1337.
Quality Insights of Pennsylvania, the Medicare Quality Improvement Organization for Pennsylvania. (2009, February 2009). Quality Improvement: The Process and PDSA Method Fitting the Pieces Together.
Performance Improvement QIOSC. (2007). Training Guidelines.
Reese, D. J., Melton, E., & Ciaravino, K. (2004). Programmatic barriers to providing culturally competent end-of-life care. American Journal of Hospice and Palliative Medicine, 21(5), 357-364.
Rosenfeld, P., Dennis, J., Hanen, S., Henriquez, E., Schwartz, T. M., Correoso, L., Murtaugh, C. M., & Fleishman, A. (2007). Are there racial differences in attitudes toward hospice care? A study of hospice-eligible patients at the Visiting Nurse Service of New York. American Journal of Hospice and Palliative Medicine, 24(5), 408-416.
Smith, A. K., Earle, C. C., & McCarthy, E. P. (2009). Racial and ethnic differences in end-of-life care in fee-for-service Medicare beneficiaries with advanced cancer. Journal of the American Geriatrics Society, 57(1), 153-158.
Taxis, J. C. (2006). Attitudes, values and questions of African Americans regarding participation in hospice programs. Journal of Hospice and Palliative Nursing, 8(2), 77-85.
Tecca, M. Merriman, M. P., and Wilson, H. P. (2007). QAPI A New Way to Manage Hospice Quality. OCS, Inc. Retrieved 08/10/10 from http://www.ocsys.com/.
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Page last modified: November 18, 2010