Web Sites of Interest
9th Scope of Work: Chronic Kidney Disease: A CMS contract which provides education regarding early referral to nephrologists and the benefits of AV-fistula as the first choice vascular access option.
American Association of Kidney Patients: The voice for all kidney patients. Contact AAKP to obtain a number of helpful publications for patients and families.
American Kidney Fund: The AKF is a
national voluntary organization dedicated to improving the daily lives
of people with chronic kidney disease. The AKF's primary goal is to
relieve the financial burden of chronic kidney failure through Patient
Aid programs.
Diabetes.com: Diabetes is a
leading cause of kidney failure. This site contains a diabetes health
library, newsroom, community information, products and prescriptions.
Dialysis Compare: Helps to locate and compare dialysis services available in your area.
Dialysis Finder: Travel help for patients and professionals.
End Stage Renal Disease Network Coordinating Center (NCC) provides centralized coordination and support for the ESRD Network Program.
End-of-Life Coalition Provides information and guidance for Advanced Care Planning and other end of life concerns
Forum of ESRD Networks and links to all ESRD Networks: The 18 regional ESRD Networks work with dialysis providers and transplant centers to assure that patients receive quality care and that Medicare dollars are used effectively. The Networks collect data, work toward quality improvement, promote patient satisfaction and maintain a clearinghouse of ESRD information.Institute for Safe Medication Practices: Provides education about adverse drug events and their prevention.
Kidney & Urology Foundation of America: The Kidney & Urology Foundation of America is dedicated to helping the more than 70 million Americans who suffer from the debilitating effects of kidney, urologic, and related diseases, and to fostering ground-breaking research that will result in new and better treatments.
Life Options Rehabilitation Program: Has information about rehabilitation for kidney patients and their loved ones.
Medicare (official government site): General Medicare information, Medicare publications
Medicare Rights Center:
General Medicare information and educational materials, changes in the
Medicare program, information on proposed Medicare legislation.
New York Organ Donor Network: Federally designated organ procurement organization for Greater New York Metropolitan area.
National Patient Safety Foundation: Indispensible resource for individuals and organizations committed to improving the safety of patients.
National Kidney and Urologic Disease Information Clearinghouse: A service of the National Institute of Diabetes and Digestive and Kidney Disease.
National Kidney Foundation:
Website contains information for organ and tissue donors &
recipients, health care professionals, patients, meetings and events.
The Nephron Information Center:
Offers information on kidney disease links, physician & patient
resources, how the kidney works, renal & other organizations.
New York State Office for the Aging: Coordinates and promotes public awareness of resources available for aging persons.
Renal Support Network: A nonprofit, patient-focused, patient-run organization established in 1993 to provide non-medical services to those affected by chronic kidney disease (CKD). RSN strives to help patients develop their personal coping skills, special talents, and employability by educating and empowering them (and their family members) to take control of the course and management of the disease.
Teen Vibe: An online magazine for teens with kidney disease